April 26, 2013

Update-

Sorry I have been missing in action- Things have been quite busy for us around here...
First off, in regards to My own PTLS issues- I feel pretty good- The first year after the reversal, everything seemed to be great. This last year has been a bit rough...

I have been diagnosed with several auto immune issues- we have had several miscarriages  and I was also diagnosed finally with PCOS- which has only gotten worse in the last year...I do have to say though, no more pelvic pain etc, which is sooo nice!

because we have had losses and undergone a couple fertility treatments etc, It is hard to say what I feel/experience is just the meds or residual PTLS-  But all in all, I am hangin in there...

In regards to PTLS awareness....

That is a loaded question...I have had a hard time organizing any thing that really follows through...Lot's of great ideas, but never really any plans put into action that treat this cause at the root. Lots of ladies want to make to send out brochures or start reversal funds etc...But that wont change anything long term...We need to shout loud enough to get heard and really change things legally, starting with new consent forms etc. I have teamed up with Vikki G. Hufnagel- to start raising awareness and really setting the record straight on what PTLS is and is not, and how it is and is not helped...Much of how I view PTLS has changed in the last year or so, in light of my own recent health issues, which I am 100% confident were triggered by the ligation/PTLS...Anyway...Much more to come on the truth behind tubals...For now, check out the radio show Vikki and I did just recently, (below in you tube vid) and stay tuned for more info!!




March 28, 2013

2 year update...

Well...Here I am 2 years post reversal...wow...I never thought I would be HERE,  3 years ago!!

I have to say, I am feeling pretty good in regards to PTLS for the most part.....However, I have been dealing with a lot of other issues that have popped up in the last year and a half or so...

Recently I have been found to have several auto immune issues that are causing me to have high inflammation and other issues, that present much like MS, though it isn't actually MS...I fully believe the auto immune issues were triggered by the PTLS?tubal ligation. I could have had many more years before I even started to see issues with this stuff, but something switched on when they did the TL and it really messed me up, and even a reversal couldn't fix that...

On top of that, we have had a few miscarriages as well, due to the auto immune issues, so that has made things even more emotional for me...

A lot of this stuff has made it hard for me to really be invested in PTLS awareness, and for that, I am sorry...I feel like I have dropped the ball a tad...I am trying to get my focus back so I can really pump up efforts to get the info out there, and be the best advocate I can....bare with me....

In the mean time...I have been intrigued by the recent uprising of  Vikki G. Hufnagel .... She basically pioneered all the info on PTLS way back at the start, and then was accused of all of this crap, just to try and bury her and shut her up...She hid for a while and is now up from the ashes and speaking out, about all kinds of issues in regards to women's right's and reproductive health....Anyway, she will be speaking today on a radio show...So tune in....I am interested to hear what she has to say!!..

CLICK HERE- for details

November 25, 2012

Standing on a road I didn't plan- wondering how I got to where I am...

...I cannot count the time HE gave me the strength to just keep breathing....

November 19, 2012

More testimonials....

"It has been 3 months post reversal and I currently on my 4th cycle post surgery. I am finally noticing the wonderful benefits! I just finished ovulating and hardly noticed pain and wasn't severely nauseated. My periods are 4-5 days with the first 24 hours heavy and becoming lighter each passing day. PMS does not have me bed-ridden anymore and calling out of work sick, and I have gone from 2-3 panic attacks per day (taking a total of 0.5mg of Xanax each day) to 2 panic attacks a month and moderate anxiety at ovulation and during AF. I now only have to take half of a 0.25mg Xanax during those times :-) in addition, my nausea has improved also. I went from taking prescription anti nausea meds (Zofran and Phenergan) every four hours of every day for over a year to now taking them a handful if times per month and that is only because I have 2 ulcers and gastritis (inflammation of my stomach lining) due to the astronomical NSAID usage prior to my reversal. I would say I am 75% better than before the reversal and I look forward to more subtle improvements with each passing cycle"
-K-

"Ok so my fourth period since TR... All I can say is there is a remarkable difference from before!!! Amazing!!! Regular flow.. And a normal amount of time.. Not 15-22 days and enough blood and clots that it looks like a murder scene!!! Only light cramping and a little bit of bloating.. Not looking 6 months prego anymore before AF!! And the anxiety is almost non existent except at ovulation and AF a little bit..! Hallelujah!!!" 

-L-


"Well it is day 4 since TR, and I feel great! I have more energy and I feel at peace, I guess time will tell if the rest will go away. Although I feel like the healing process is longer then I thought. I have all this energy and can't do anything with it....ugh I know I need to heal...but I feel like I have been a prisoner all these months and been let out with a million things I want to do but have to wait till I am healed."

-A-

"Hello Ladies! I just wanted to let you know that I had my tubal reversal August 7th of this year at Chapel Hill it has been about 3 months and I am starting to feel results.(yay) I am way better than I was after my tubal ligation.......Please don't give up! I had moments when I thought about giving up cuz I felt like there was no hope and that I would feel this way forever but do everything you can if you are positive it is from the ligation to get the reversal done it is well worth and I have no regrets!!!!!!"



November 6, 2012

Tune in!


Greetings to all,

This is a friendly reminder to tune in to www.blogtalkradio.com/real-life-decoded Wednesday, November 7, 2012 live at 8:00pm or you can call in to 215-383-5742.
 
We will be discussing Post Tubal-ligation Syndrome, with the world renowned Dr. Charles Monteith.

Women if you have been experiencing a major difference in your body since you had a tubal-ligation done such as heavier bleeding during your menus, unusual cramping, unexplained headaches, sexual mood changes, etc. you could be suffering from the PTLS or maybe you are considering having your tubes altered to prevent future pregnancy you will find this broadcast enlightening as you will be able to make a more informed decision through the knowledge you gain as you tune in for a life changing, impactful, informative, and robust discussion with the world renowned Dr. Charles W. Monteith - Chapel Hill N.C.
 
Dr. Monteith is a certified tubal reversal specialist who began full time practice in reversing tied tubes at Chapel Hill Tubal Reversal Center in the summer of 2008 following seven years in the practice of high risk obstetrics and advanced gynecologic surgery. Dr. Monteith has completed a microsurgery training course at the Cleveland Clinic and a six month fellowship in tubal ligation reversal surgery with Dr Berger. Dr. Monteith is a certified tubal reversal specialist who began full time practice in reversing tied tubes at Chapel Hill Tubal Reversal Center in the summer of 2008 following seven years in the practice of high risk obstetrics and advanced gynecologic surgery. Dr. Monteith has completed a microsurgery training course at the Cleveland Clinic and a six month fellowship in tubal ligation reversal surgery with Dr Berger. We will also have two additional guest joining us Amy Barnett and Megan Priest.
See you Wednesday, November 7, 2012 at 8:00pm sharp, once again at www.blogtalkradio.com/real-life-decoded or feel free to call in to listen.
Remember, if you are not able to tune in to the live session you can always go back to listen to the archived broadcast at your convenience.

November 5, 2012


Hello ladies. I wanted to remind you that Wednesday, November 7th, There will be a show airing live at 8:00pm EST online at the website listed below. You can call in with questions or your experience with PTLS to help raise awareness. The show will be recorded so if you miss it the first time around you can go back and listen at your convenience. So those of you that have had tubal ligations or shared in the pain I urge you to read my story here:

MY story

 The night of the show, Myself (Megan Priest),  Amy Kat Barnett and Charles Monteith will be the guest speakers and will be there to share info about PTLS, our personal stories with PTLS/ the reversal- Also, we will be available to answer questions about our journey with PTLS, along with the wonderful Dr Monteith of Chapel Hill Tubal Reversal Center who can answer any questions you may have about the reversal process in relation to PTLS. Together we hope to raise more awareness about this devastating syndrome that affects more and more women everyday. I am so, so very honored to be apart of this awesome event, and get this info  out there to women all over! so PLEASE join us on Nov 7th- at 8 pm  at real life decoded online radio ( link below) to be apart of this awesome opportunity to raise more awareness to both women and the medical community!

CLICK HERE- For the raido show link-

October 26, 2012

Radio show date set!


Tune in on Nov 7th at 8 PM for a special show on PTLS with interviews from the amazing, Dr. Montieth at Chapel Hill tubal reversal center, Myself (Megan Priest-founder of Fit to be un-tied my journey with PTLS blog and FB pages, and also PTLS ladies FB group) and from a woman named Amy who also has struggled with PTLS, found her way to my blog, and on to a reversal and is now also PTLS free! We will be talking about what PTLS is, how it affected us, and most importantly, that there is HOPE out there for symptoms and to help raise awareness to the medical community that this IS a real problem that NEEDS to be addressed, and every single woman needs to be aware of before getting a ligation done!! Please spread the word about this show!

Real Life Decoded Online Radio by Real Life Decoded | Blog Talk Radio

October 3, 2012

Awesome news!!!

Exciting news! I have been asked to be a guest speaker on a radio talk show, to share about my experience with PTLS and the reversal!! this is HUGE ladies! It will air Nov 7th- at 8 pm! One I find out the station details and  a link to where you can find it online I will post! I am so excited to see PTLS getting some recognition!

July 11, 2012

PLEASE, PLEASE, PLEASE SIGN!!!!!!!!

Please sign and share this link to change the consent forms  so women are informed of ALL the side effects that can happen after a tubal ligation!! We need as much help and as many signature as we can!!! please sign!!!!!!!!!!!!!

CLICK HERE or go to the right hand side of my blog page and sign the widget for the petition!!!
thank you!!!!!!!!!!!!

July 9, 2012

New Group on BabyCenter for PTLS!

Just wanted to share with you a group for those ladies dealing with PTLS on baby center....I have been a BBC member ( various names) for over 10 years, and I know many others are also members and would like to see some support there....


BabyCenter PTLS support group

July 5, 2012

PLEASE SIGN!!!

I have been informed of a person who initiated a petition to the congress to make it so DR's have to inform women about PTLS! This is amazing awesome news!! Please Go HERE to sign the petition at Change.org
Thank you!!!

June 23, 2012

SO encouraging!!!!!!

Every day, I hear from women all over, who are suffering from this terrible syndrome. It breaks my heart, and makes me angry that more and more women are being given tubal ligation's and never told about the side effects that could happen...

BUT, in the last 6 months or so, I have had several women post their stories on the support groups/facebook pages, and they have not only had their DR agree PTLS  is REAL, they were actually diagnosed BY their DR!! AND, in some of my other conversations with ladies looking into a tubal ligation for a means of birth control, several have stated their OBGYN's warned them of the risk of developing PTLS!!!! wow!!! THAT right there just makes me shriek with joy and excitement! Could it be?? Are we making head way with the medical community?? I THINK SO!!!!!!!

Take heart ladies who are suffering and dealing DR's who keep sending you out the door with a RX for antidepressants, and telling you it is " in your head"...NOT all DR's now a day are treating women with these kind of symptoms like a nut case!! If your DR will not listen to you, and flat out tells you PTLS does not exist....FIND A NEW DR, and keep looking till you find one who is not so wrapped up in the money making business in our medical industry...There are some still left that CARE about your health and well being! Remember, YOU pay THEM, not the other way around. If your care is being neglected...Get out!


Anyway...i just wanted to share that little bit of excitement...I know two years ago, when I first started all of this, there was so little information, and I had NEVER heard of a case where a DR actually believed in it, and diagnosed a person with it officially, so that right there just makes me want to celebrate! we are making progress! keep spreading the word!!

March 19, 2012

1 year later...

WOW....Just WOW.....
I am sooooooooooooo blessed to be HERE, and on the other side, one year later...and PTLS free!!!!!!!!!!!!
If any of you are reading this and on the fence....PTLS is REAL, and a reversal DOES help!! I don't CARE what DR's say!!

If you had told me two years ago, I would be here today, I would have said NO way....We had NO money for a reversal, and I was hopeless.....And God provided...AND Opened doors to be able to get this info out there!!

If you are waiting....or wanting this...Pray and keep hope...It will happen!